tag:blogger.com,1999:blog-5718808984404531239.post2100091136476671992..comments2024-01-11T21:08:38.202-05:00Comments on my new islets: Changing Immunosuppressants againKathyhttp://www.blogger.com/profile/03441855736336430014noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5718808984404531239.post-61003881653776238872012-09-17T21:54:48.353-04:002012-09-17T21:54:48.353-04:00Thanks for the nice thoughts and well wishes. It ...Thanks for the nice thoughts and well wishes. It really does help my state of mind and I do believe in positive thinking!<br /><br />I was aware of the risks of immunosuppression before the transplant, but not extremely worried. I expected to deal with what ever came up. And thats still basically what I'm doing. My doctors make these important decisions and I feel that I am in good hands. They are concerned both with my health and with the research.<br /><br />I'm mostly worried about my islets at this point. I know that this transition is stressful for them. All that I can really do is wait and see what happens and hope for the best. And as both Eliza and Karen pointed out, I'm part of a research project. I do take that very seriously and feel good about my part in it. For now, I'm concerned, but still feel very lucky to be where I am.<br />Kathyhttps://www.blogger.com/profile/03441855736336430014noreply@blogger.comtag:blogger.com,1999:blog-5718808984404531239.post-24384635885841443202012-09-17T10:37:25.126-04:002012-09-17T10:37:25.126-04:00How frustrating and scary this must be for you. I...How frustrating and scary this must be for you. I'm hoping things will go really well with the new combo. And I want to thank you for being the trail-blazer that you are. Because I know the doctors are learning such important things from you.Karenhttps://www.blogger.com/profile/05853213615426205881noreply@blogger.comtag:blogger.com,1999:blog-5718808984404531239.post-62780413140840058572012-09-16T21:31:23.990-04:002012-09-16T21:31:23.990-04:00Kathy,
Sorry to hear about this set-back. I conti...Kathy, <br />Sorry to hear about this set-back. I continue to hope and pray they move the research for the cure along. I hope that the new med helps to ease, aleviate some of the kidney issues. I know about the worry aspect, it is hard for us not to at times. You have done SO much to push the progress forward and I thank you for that. I am curious is you had any thoughts on the immunotherapy prior to you undergoing the transplant? Or, were you in a place where it was worth the risk? Just a curiosity question, as I have been asked what made me do what I did. Be Well and thanks for the updates. et63https://www.blogger.com/profile/07050809474429012237noreply@blogger.comtag:blogger.com,1999:blog-5718808984404531239.post-24183079843440318922012-09-15T20:28:46.624-04:002012-09-15T20:28:46.624-04:00Hey Kathy!
Hope this change helps move things clo...Hey Kathy!<br /><br />Hope this change helps move things closer to where you need them to be.<br /><br />Thanks for the update!Scott K. Johnsonhttps://www.blogger.com/profile/17881833642347872927noreply@blogger.com