My CMV (cytomegalovirus) is back. A few weeks ago, I noticed that I was feeling a little tired. I just couldn't get motivated to do things. My blood sugars had been elevated about 15 units on average. My diarrhea was a little worse. I was beginning to wonder about the CMV. Luckily, I was due to have it checked soon. Ironically, I began to feel a little better and my blood sugars decreased back to normal. I decided I was wrong about having CMV. Then on Thursday evening, my infection control doctor called to say that my CMV titer was quite high. It's amazing how having a doctor tell you that you are sick can make you really feel sick. The next day, I felt very tired. Was it the power of suggestion, or was I in denial before? Who knows?
The infection control doctor was expressing concern about me being on an antiviral again for a long term, but said he would discuss this with Dr. Bellin. In the end, they decided to put me back on the Valcyte. This is the antiviral that I was on immediately following the transplant and again for two months with the first CMV infection. I have been taking it for 5 days now, and the tiredness seems to be gone. My blood sugars are still good. I never developed a fever. Hopefully, we caught it on the downswing. I might just have to contend with this for the long term. It is not that I am catching it from someone, it is just a latent infection that my immune system would normally keep at bay. But, being immunosuppressed allows the infection to gain control at times. I feel comfortable with the decision to treat this with the antiviral. I would not want to feel that tired all of the time.
Dr. Bellin was concerned that I might have CMV colitis because of my worsening diarrhea, so I have to have a colonoscopy to rule it out. Lucky me.
I just returned from my 18 month visit to Minneapolis. The timing was good in that I could discuss the CMV and the strategy for dealing with it with them. The trip was enjoyable as always, and I feel very reassured and that I am in very good hands. I will post the lab results when they are all available. I actually had good luck with all of my flights.