I recently found another islet cell recipient online and he has created a facebook page where we can all share our experiences with this. It was such a good idea! Its so hard for us to find each other because of the constraints of HIPAA. I appreciate the few recipients that I have been able to locate. Its so nice to be able to share our joy of the experience in general and to compare some of our symptoms of the side effects of the medications we are all on. I hope that it really takes off.
I am completely done with the immunosuppressive drug Cellcept. I just had my levels for Rapamune and Prograf checked and both were within range. Maybe I can be on coast for awhile with these drugs.
My mouth sores (caused by the Rapamune) are gone now and I haven't got any new ones. They were no fun.
Cassie is in California now. After a few going away parties and agonizing over which clothes to take, she is safely there. We already miss her a lot. She and Gary are hoping to get together soon. That part, I like.
I have watched a few people who were hoping to get islet cell transplants have their hopes dashed. The most recent one was due to a high PRA which is a test of the amount of antibodies you have in general. The higher the PRA, the more likely you would be to reject the transplant. Its something you have no control over, which makes it seem even more unfair. My heart goes out to these people. The only silver lining might be that with all of the advances that are occurring now in diabetes research, these people might get a newer treatment that does not require drugs or might have other benefits compared to the current technology. I wish them the best.
Its Easter weekend, the weather is great, and I am off. Gary and I are planning a scenic walk this afternoon.
The pictures are of some spring flowers, my pig at work that was decorated for Easter by my creative coworker and myself, and the last one is of pig islet cells from the Living Cell Technologies site.