Saturday, August 27, 2011

Gathering my thoughts

I seem to be right in the middle of so many projects right now.  Some diabetes related and some not.  Writing them down can be therapeutic and help me set and see some priorities.

I am trying to organize two Promise to Remember Me meetings with Ohio congressmen.
I was able to get a meeting date for my own local representative, Bob Latta.  It will be on Tuesday afternoon.  I have a college student and hopefully a younger child attending with me.  We will all tell our own diabetes stories and I will leave an information packet.

I'm also trying to get a Promise meeting with Speaker Boehner who is from the Dayton area.  After several calls and emails, I still don't have a meeting set.  I'll just have to be persistent.

I'm busy getting my JDRF walk organized.  The email system of communication is convenient, but too easy to ignore.  I think I have a day of making phone calls ahead of me in gathering my troops.  That's in 3 weeks.

I will be going back to  Minnesota! for a Transplant Symposium.  Dr. Hering told me about it at my visit last month.  I've been waiting to see it in print before I start preparing and buying a plane ticket.  I finally have seen a brochure, so am starting to think about what I want to say this time.  Needless to say, I am very excited.

I have my appointment with the nephrologist right after my meeting with Congressman Latta on Tuesday.  I am more curious than worried about this.  When my endo increased my dose of Lisinopril (BP medicine), the ankle swelling went away.  My biggest fear is being told that I now have to limit my protein intake.  I'm already limiting carbs and fats and am too thin.

Renae called on Thursday to tell me that my monthly lab draw showed that my level of Tacrolimus was very low.  We're hoping it is a fluke or lab error and I had it redrawn yesterday.

My BGs have been fluctuating more lately.  Since my last A1c and C-peptide results, my new strategy is to just increase my insulin.  Its frustrating, but works.  Yesterday was better, so hopefully I'm getting back to normal.  My sleeping habits have not been good lately, probably due to some of the above and below.  That can effect BGs.

Still working on getting a continuous glucose monitor.  I need to call my endo to see if he has submitted his letter yet.  I want to tell him about the Diabetes Symposium too.


On Monday evening, Cassie left for California.  She and a friend made the trip across the country.  They arrived in Sacramento on Thursday where Cassie is in a friend's wedding.  They will leave there on Sunday to visit Gary in Santa Barbara and then make their way back to San diego.

Dolly was released from the Assistance Dog program.  She just couldn't get past her fear behaviors.  We had her for about 10 days until a family was found to adopt her.  We said goodbye to her on Thursday morning.  It was very emotional for all of us.  We really miss her.
I have decided that I want to try training another dog.  It was suggested that I try an older dog this time because I won't be having as much help at home now.

We have a nice weekend planned.  Nothing for today and a trip to Put in Bay with some friends tomorrow.  Sounds about perfect.

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