November has come and gone and most of my issues are resolved. But I still have a few to go and they are complicated.
I had a colonoscopy, a blood transfusion during a long hospital stay, and finally a kidney biopsy at the end of the month. The switch from Myfortic to Imuran has resolved my stomach and fever issues. That helps a lot. Of course the transfusion solved the anemia problem. But, I'm still not there yet. My kidney function tests are still abnormal. And despite the elimination of the energy depleting problems that I just mentioned, I still tire very easily. I've developed a strange headache that seems to be triggered by motion.
The kidney biopsy has yielded a surprising result. It was done to determine if it was the Prograf that was causing the stress to my kidneys. It turns out that I have a viral infection in my kidney of the BK virus. Its common in kidney transplant patients. The treatment is lowering the dose of immunsuppression. My doctors will be discussing how to treat this later today.
My blood sugars have been running higher lately. I'm up to about 20 units/day now. I think that part is due to my lower level of exercise. I just don't have much extra energy right now. That seems to be getting better and now I'm wondering if the kidney infection might be a factor in that.
I did have a few nice things in November. I had a good time learning to make soap with a friend and we have a few good batches to give out for Christmas.
And, I was made the Advocacy Team Chair(ATC) of the Northwest Ohio Chapter of the JDRF. I haven't been able to do much so far because of all of the above, but I'm excited to do this. I'm attending the walk awards ceremony this week and am hoping to meet some of the Toledo JDRF board and find out how I can fit in.
December is here now, and my goal is to get back to a normal live before the end of it.
I had a colonoscopy, a blood transfusion during a long hospital stay, and finally a kidney biopsy at the end of the month. The switch from Myfortic to Imuran has resolved my stomach and fever issues. That helps a lot. Of course the transfusion solved the anemia problem. But, I'm still not there yet. My kidney function tests are still abnormal. And despite the elimination of the energy depleting problems that I just mentioned, I still tire very easily. I've developed a strange headache that seems to be triggered by motion.
The kidney biopsy has yielded a surprising result. It was done to determine if it was the Prograf that was causing the stress to my kidneys. It turns out that I have a viral infection in my kidney of the BK virus. Its common in kidney transplant patients. The treatment is lowering the dose of immunsuppression. My doctors will be discussing how to treat this later today.
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| my soap |
I did have a few nice things in November. I had a good time learning to make soap with a friend and we have a few good batches to give out for Christmas.
And, I was made the Advocacy Team Chair(ATC) of the Northwest Ohio Chapter of the JDRF. I haven't been able to do much so far because of all of the above, but I'm excited to do this. I'm attending the walk awards ceremony this week and am hoping to meet some of the Toledo JDRF board and find out how I can fit in. December is here now, and my goal is to get back to a normal live before the end of it.
2 comments:
I'm glad some things have improved - but I'll keep you in my thoughts as the doctors work to get you back to 100%!! It sounds like a really rough patch in the road for you right now. :(
Yay for your new ATC position though!! You are going to do an awesome job!
Ditto everything Karen already said. Sorry you've had such a rough ride. Hopefully they can get it all figured out soon for you!
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