I had my 180 day visit last week in Minneapolis. Despite the cold, it was a fun trip. What made it fun was that I had the opportunity to meet two other islet cell recipients. A man who had his transplant in November and a woman who had hers in December. They both happened to be there for checkups on the same day as me. We spent almost an hour together comparing our experiences. Both of them are on the same protocol as me (same drugs), and are having the same positive results. Neither is off of insulin completely yet, but are at about the same level as I was at their stage. We had very similar experiences. We were all diagnosed in our early 20s, and were all frustrated by our limitations. We all seem to be tolerating the immunosuppressants well, although both my and the woman's white counts were under the lower limits of the protocol. We both had an injection of neupogen to raise our white cells. I didn't feel any different either before or after and I haven't been sick, so it wasn't a big concern for me.
It was so nice to be able to share our experiences. I now know three transplant patients from U. of Minn. and a few others that I have met on line. I also get some good questions from people who read my blog or participate in discussions on the Tu Diabetes website.
Hi. I am on the wait list for an islet cell transplant at U Penn. I sent an e-mail with some questions to your Owens.edu e-mail address. Should I have sent it to the yahoo.com address?
No, the owens one is best. Try it again.
Thanks. I just sent an email to your owens.edu address. I hope you can see it. Thanks.
Thank you for your blog and for the information. Could you tell me what the requirements are to get on a list for an islet cell transplant?
Also, what made you decide to do a cell transplant as opposed to a pancreas transplant? Probably much easier and less invasive I would assume...
You can check out my blog here: http://diablog62.blogspot.com/ Its about my experience as a type I diabetic and having a stem cell transplant to see if it would help my condition.
I'm not sure how to reach you. I'll try your blog too. I would love to know how you are doing. I'll answer your questions on your blog and leave my contact info.
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