So, it was a long way to go to sign a paper, but I understand that this is part of being in a clinical trial. It is different than just going to the doctors office. Both parties, the subject and the research team have a big investment of time and money and/or time and health. I can see now especially, how important it is that we trust each other.
But at this point, I needed to go up there and sign a form that states that I know what I am getting myself into. It is actually read word for word by the transplant coordinator. Luckily, I have a background in health care and could understand most of it. I was encouraged to ask questions on anything that I did not understand. So we went through it all together and then I signed the form. The entire form had been e-mailed to me earlier, so I had ample time to read it over before I had to sign my name at the bottom. So, with this done, I was added to the transplant list and would be waiting for the phone call.
Just before I left the clinic, I had the very pleasant surprise of getting to meet Dr. Hering. I had been reading everything I could about him and his work and had seen some video clips of him talking about his plans, so I was very anxious to meet him and shake his hand. He was every bit as impressive as I had expected, and very nice to talk with. We discussed the procedure and he even took the devils advocate approach, quizzing me to assess whether I really knew what was involved. I think I convinced him that I did and that I really believed this to be my best option for my long term health. Having uncontrollable blood sugars is not good in either the short term or the long term. I also asked about the pig islet cell research, which I think kind of amused him.